Kyle Small’s Story and Why Haemophilia Awareness Matters Haemophilia is often misunderstood. Many people believe it means bleeding excessively from small cuts, when in reality, the most serious danger lies beneath the surface. Haemophilia is a hereditary blood disorder passed from mother to child, where the blood does not clot properly. People with haemophilia do not bleed faster than others, but they bleed for much longer, and internal bleeding, especially into joints, muscl

Bruce Campbell: The Rare Warrior Who Refuses to Stop At Rare Diseases South Africa , we celebrate resilience, courage, and community, values personified by Bruce Campbell , a true Rare Warrior whose journey inspires both the rare disease community and the sporting world. A Life of Resilience Bruce’s battle with rare disease began at six years old when he was diagnosed with Guillain-Barré Syndrome , leaving him paralysed and on a ventilator. Against the odds, he learned to wal

I was twelve years old when I was diagnosed with Neurofibromatosis Type 2 (NF2) . My dad had it, and with a 50% chance of passing it on, my family always knew it was something we needed to watch for. Still, nothing could have prepared us for how my life would unfold. A Childhood Marked by Tumours and Treatment My first MRI revealed a tumour growing on my vestibulocochlear nerve. I had just turned thirteen when I began my first twenty‑eight sessions of radiation . Within month